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Videos of channel "UC1YVq-XQ8FA3-ONbi7QScHg", see also playlists


#1 / 1:01:30 /  1.1K views /  1 month ago /  Webinar: Community Update with ITF Therapeutics: Introducing DUVYZAT™ (givinostat) [March 2024]

#2 / 45:03 /  349 views /  1 month ago /  Webinar: Sarepta Therapeutics - Data update from MOMENTUM study, SRP-5051 [Mar 2024]

#3 / 39:33 /  235 views /  1 month ago /  Webinar: NS Pharma - Overview of New Exon Skipping Trials: Brogidirsen and NS-050/NCNP-03 (Mar 2024)

#4 / 29:09 /  241 views /  1 month ago /  Webinar: PTC Therapeutics — EMFLAZA® Landscape in 2024

#5 / 52:15 /  279 views /  2 months ago /  Webinar: Overview of WVE-N531 and the FORWARD-53 Clinical Trial with Wave Life Sciences [Feb 2024]

#6 / 53:00 /  324 views /  2 months ago /  Webinar: Dyne Therapeutics — Advancing DYNE-251, an Investigational Medicine for DMD [Jan 2024]

#7 / 1:00:58 /  386 views /  3 months ago /  Navigating Steroid Choices: Understanding the Process, Pathways, and Policies

#8 / 13:27 /  298 views /  4 months ago /  Gene Therapy & Antibodies (Innovation Conversation with Barry Byrne, MD, PhD)

#9 / 1:03:41 /  475 views /  4 months ago /  Webinar: Community Update on the New INSPIRE DUCHENNE Clinical Study of SGT-003

#10 / 1:00:42 /  623 views /  5 months ago /  Webinar: AGAMREE® Approval with Catalyst Pharmaceuticals, Inc. [Nov 2023]

#11 / 59:55 /  1K views /  5 months ago /  Webinar: Overview of Topline Results from Phase 3 EMBARK Study

#12 / 50:51 /  1K views /  5 months ago /  AGAMREE Approval: What this means for you and your family

#13 / 25:01 /  115 views /  6 months ago /  Advocating for Access: Overview of Medicaid DUR and P&T Meetings

#14 / 54:28 /  1K views /  6 months ago /  Capricor Therapeutics: CAP-1002 HOPE-3 Program Update

#15 / 49:31 /  592 views /  6 months ago /  Edgewise Therapeutics: A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy

#16 / 59:38 /  108 views /  6 months ago /  Supporting Families Through Decision Making

#17 / 52:31 /  442 views /  6 months ago /  Webinar: Affinity Duchenne™ and Affinity Beyond™: Updates on Investigational RGX-202 from REGENXBIO

#18 / 31:23 /  137 views /  7 months ago /  Advocating for Access: Insurance 101

#19 / 7:21 /  197 views /  7 months ago /  Research Row Presentation: Viltepso (NS Pharma) - PPMD 2023 Annual Conference

#20 / 29:12 /  308 views /  8 months ago /  Advocating for Access: Navigating Approved Therapies in Duchenne

#21 / 4:03 /  2.3K views /  9 months ago /  ELEVIDYS and Genetic Variants

#22 / 1:00:50 /  363 views /  9 months ago /  Research Row Breakout Session: PPMD Supported Research -- PPMD 2023 Annual Conference

#23 / 59:37 /  582 views /  9 months ago /  Research Row Breakout Session: Approved or on the Horizon -- PPMD 2023 Annual Conference

#24 / 16:26 /  76 views /  9 months ago /  Turning Adversity into Action: Your Power -- PPMD 2023 Annual Conference

#25 / 54:57 /  575 views /  9 months ago /  Gene Therapy: The Power of Advocacy & Real World Evidence -- PPMD 2023 Annual Conference

#26 / 11:49 /  138 views /  9 months ago /  Closing Remarks & Thank You -- PPMD 2023 Annual Conference

#27 / 29:14 /  38 views /  9 months ago /  Ethics and Fair Play -- PPMD 2023 Annual Conference

#28 / 52:15 /  221 views /  9 months ago /  Combination Therapies: How do We Get There? -- PPMD 2023 Annual Conference

#29 / 1:05:25 /  171 views /  9 months ago /  Battling Behaviors -- PPMD 2023 Annual Conference

#30 / 1:15:51 /  379 views /  9 months ago /  More than Puberty: The Impact of Testosterone -- PPMD 2023 Annual Conference